PICS of the celebration

I have been good

Yeah, Can say so, Darren has been very good this week, that's why I have nothing to write since the last time I wrote something on Sunday until now. He throws less tantrum now, and he can focus more. He can sit down and do his tasks for 30 mins at least now. Eventough still no speech, but I belive it will come soon, just have to be patient.

He will have his performace on Friday for Christmas, at Fei Yue. Eventough just a small role, but just like Uncle Ng said, u need small roles to do big roles. So, this is a good start for Darren. He will be able to do something bigger the next time, I believe this.

Today is Jie Jie Jing Jing's b'day. HAPPY BIRTHDAY JIE JIE! Eventough Darren & Derrick were not there to celebrate with you, because we sleep early. But we wish you here :-)

Drooling & blinking of eyes

It has been a week, Darren keeps blinking his eyes & lets his saliva go down to his chin. I asked Sanjay abt this when we met him just now. He said maybe it's because his focusing level is higher now and he always forget to swallow his saliva. As, for the blinking, he has no definite answer, it's a mystery of the autism world.

I played the CD that Sanjay lent to me last week, but he didn'y like it and always cry. So, we are changing to "Samonas" CD - Guitar & flute. Let him listen to it a while a go before his bedtime. He seems to like it a lot, keeps laughing and flipping his hands. I hope this has to be the right CD to help him to improve. We are still waiting anxiously for the day when he can talk to come, so far nothing with meaning yet.

Tomorrow supposed to have a session of ST with suan lin, but not sure if she will can cancel it again or not. Darren likes to go to that place, maybe it's because suan lin usually will let him do whatever he wanna do. No forcing... so he adores her, haha.

Tomorrow it's hiking time again, hope it will not be raining............Rain rain go away, come again some other day.......little children want to play..........

WHEAT!!

I was looking at the bottle of Brown rice powder Darren always drink with his soya milk, and to my horror, it contains 5% of wheat! GF/CF diet Darren is on is avoiding, Casein (animal milk, dairy products), gluten (baker products), yeast, wheat, soya, sugar. So, I have to stop his "kids chelat" for 2 weeks at least, to heal his leaky gut caused by yeast overgrowth, to make sure it's okay before starting the chelation process again. So, that it will not backfire.

Summary from "Children with starving brains" book:

What parents can administer themselves (All can be purchased from www.kirkmanlabs.com) :

* GF/CF Diet, info can be found all over the internet. (NO animal milk, dairy products, baker products, sugar, sugar from apple & grapes, chocolate, etc)

* Enzyme; to balance the impurity caused by eating non GF/CF food by mistakes.

Given in every meal. Kirkman Labs sell 2 types DPP-IV Forte or Enzyme complete with DPP- IV.

* Probiotics, to heal leaky gut.

* Multivitamin & mineral without copper. For overall well being.

* B6 & Magnesium

* Calcium

* Vitamin C

* Vitamin E

* Vitamin A or Cod Liver Oil

* Essential fatty acids; EPA, DHA & GLA

* DMG/TMG & folic acid

* Folate

* Vitamin B12

* Grapefruit extract. For immune system.

Darren is doing better & beter each day. Today he went to Fei Yue. The teacher doesn't have to drag him to his seat now, he walked there & sit down all by himself. And teacher reported that he is very excited today, over everything. Means his attention level is higher now. He is aware of his surrounding.

Potato milk

Today is Fei Yue for Darren, he is happy, laughing & giggling away. That's what the teacher told me. And she reported that his concentration is higher nowadays & able to sit for 30 mins to do his tasks, which is a good sign.

Sanjay suggested that we started him on sound therapy. He lent me his CD & I play it everyday at around 7 or 8 PM for 10 mins. Since we have difficulty asking him to put on his headphone. I decided to foget about it and just play the music from our cd player inside his bedroom. I will put on headphone & listen to my own song while i accompany him during the sound therapy session. He has the therapy for 3 days already, so far he is very happy with the music, but i can't really see big leap in his performance yet.

This afternoon was at the library reading a book called "Children with starving brains", it's about biomedical treatment for autism kids. They mentioned about GFCF diet (Darren is in it), Vitamin B6 & magnesium (Darren is in it), Calcium (Darren is in it), Probiotics (Darren is in it), Milk thistle (Darren is in it), Vitamin C (Darren is in it), Multivitamin (Darren is in it). I think Darren need to add some other supplements in his diet; to maintain the minerals & vitamins lost during his chealtion process, they are selenium, zinc, cod liver oil (Omega-3), vitamin E & multi amino acids. The book also mention that GFCF diet need to avoid soy also, but now Darren is drinking soya milk, so I am a bit worried. Because they believe soya is feeding the yeast inside his body, which is not good, it will caused yeast overgrowth & causing gut leaking, which will make the chelation process backfire. I think no choice, we have to buy the potato milk from kirkman labs also. sigh... I can't believe how other autistic parents think that drinking goat milk is okay for their children, when i know that goat milk also contains casein, which is not good for autistic kids. But, well everyone has their own beliefs.

The holiday is coming very soon......... Jingle bells, jingle bells, jingle all the way.....

Kirkman rocks!

Finally the shipment from Kirkman Labs is here! I am so grateful for the speedy shipment. I mean they are doing autistic kids business, so they know what is speedy shipment is.
I gave him his B12 injection today, hope he will not have difficulty sleeping tonight, as always happen after he got the jab.

He took his nap for 15 mins only today. Nowadays he seldom take his nap, and after school usually he will feel very sleepy and throw a big tantrum. And he must go into his room by 8 PM. But he will only sleep at around 9.30 PM to 10 PM.

Today is going to Fei Yue, his favourite place. But holiday is coming.... for a month. from 1 Dec'07 till 1 Jan'08. I was thinking wanna let him learn swimming for the holiday, but the instructor told me that this month is a rainy season, so usually they don't advise us to take any lessons as it will be a lot of cancellations because of the rain. So got to be next year then.
I found the swimming instructors' contacts from the forum, they have some experiences working with children with special needs. U see, that's one of the advantage of peeping into autism forum. Parents of another autistic kids know best of everything.

Since he can't take his swimming lesson, I am thinking of letting him go to piano lesson instead, because he likes piano a lot. But until now have not found any instructor who has experience working with children with special needs.

The teacher at Fei Yue said he can sit for longer period & very focus today. Maybe it's due to the B12 jab. And because he took in his calcium & probiotics before go to school. So, you see, you can't deny that supplements help him a lot :-)

Darren will be involved in a performance on 30th nov'07 @ 4.30PM at his school. haha. Papa was wondering yesterday what kind of role can he play? he can't even be a tree who doesn't need to act, because he can't stand still at a place. So, I asked his teacher this afternoon. She said he will be just ringing a bell with the jingle bells song. wahahaha. Even that task is maybe too difficult for him, as he will run away. We shall see ;-p

Darren..Na..na...na

Yeah, that's what Darren is able to utter after more than a month on "kids chelat". He is a lot more aware of his surrounding now. Able to turn when being called, and will turn to see if he heard someone screaming behind 0r near to him. This is one great improvement!
I believe he will be able to talk in a while, which will make me less worried, as he will be able to say what he want and need, so temper tantrum will be less.

Today he is doing quite well at PCS JW, after the teacher followed some advices by Vivian. He is able to sit down on the chair and do his tasks. His teacher is really greatful that she made that trip to Fei Yue. haha.

He has not taken his probiotics & calcium powder for 3 days, and he keeps blinking his eyes nowadays. I am still waiting for the shipment from Kirkman labs to arrived. As I will stop buying from SIngapore source which is quite costly. Hope the shipment will be here tomorrow....