It has been a week since I last pen down here. Last week Darren surprised me with another words coming out from his mouth. I was giving milk to him that afternoon, he gave it to me while it left with a bit of milk, so I gave it back to him to finish it. He actually gave it back to me & he said "NO MORE". I couldn't believe my ears, so I took it from his hand and gave it to him again, yet he gave it back to me and said "NO MORE". I was of course filled with pure joy. :-) My efforts don't go down the drain.And those people who thinks that autism is not reversible, I will proof them wrong in the end........
I am going to Bali again this coming June. I need a break from all this stress I put on myself in order to reverse this devil called "autism". But it will be all worth if in the end if Darren is able to blend into this cruel society.
He is babbling, more and more new words this week. And his eye contact & engagement with me and the maid has definitely improved. And I am happy for him. But we can't afford to go for his therapies this week as papa is having problem with his salary processing from the govt. Hey govt uncles & aunties, my boy needs those therapies, so please.....just process those money and give it to us........
Wednesday, March 19, 2008
Tuesday, March 11, 2008
Rainy season again
This month the rain seems to be pouring a lot. I hate this kind of weather, as bringing Darren to his school & therapies will be a big hassle. He likes to play with rain & I have difficulty keeping him under the umbrella. hehe
Today he went for his intervention at PCS JW like usualk, but the timing has been changed to 1.45 PM as the centre has something on in the morning so Mrs. Mohan was unable to teach Darren. When I arrived at the centre to pick him up, I was amazed to see him sitting on the chair, alone! Mr.s Mohan has gone to another room to get something, and he was actually sitting down there to wait! This is big improvement. I am really happy for him.
We got our new maid finally. A refined lady, who is very patient with the kids. I hope this one will be able to work for us for long as I like the way she handles the kids. And they adore her also. She is just like my mom, gentle & kind.
Darren doesn't cry for no reason now & he enjoys playing with Derrick in the evening when he is back from childcare. I am really really happy to see this kind of improvement in him. Eventough my granny just phoned me earlier, to tell me that she helped me to ask the "god" in my hometown about Darren's condition and the god actually said that he was born that way, means the chance of recovery is slim, but we never at the 1st place expected him to recover and function like a normal kid. Our wish for him is just that he is able to take care of himself when we are gone, as this society is cruel to the disables.
Another mother at Fei Yue told me yesterday about her experience at IKEA. They have those playroom for the kids which you can leave the kids there while you are shopping. SO, she left her autistic son there to play with his elder brother. But while they are shopping halfway, they heard their names being called through the paging system in the store. And she was wondering why. The satff actually ticked her off because she didn't inform the staff about her child condition, and he actually dig his pampers and smell his hand, and other parents took their kids away for the fear of catching any germs from this unhygienic boy....gosh! I hope autism awareness movement will be the next campaign the government wanna think of. If i were her, I will feel very sad and I will probably cry within... I don't know what to say, really.....
Okay, off we go to kyoko's place now :-) Another 30 mins of crying.......
Today he went for his intervention at PCS JW like usualk, but the timing has been changed to 1.45 PM as the centre has something on in the morning so Mrs. Mohan was unable to teach Darren. When I arrived at the centre to pick him up, I was amazed to see him sitting on the chair, alone! Mr.s Mohan has gone to another room to get something, and he was actually sitting down there to wait! This is big improvement. I am really happy for him.
We got our new maid finally. A refined lady, who is very patient with the kids. I hope this one will be able to work for us for long as I like the way she handles the kids. And they adore her also. She is just like my mom, gentle & kind.
Darren doesn't cry for no reason now & he enjoys playing with Derrick in the evening when he is back from childcare. I am really really happy to see this kind of improvement in him. Eventough my granny just phoned me earlier, to tell me that she helped me to ask the "god" in my hometown about Darren's condition and the god actually said that he was born that way, means the chance of recovery is slim, but we never at the 1st place expected him to recover and function like a normal kid. Our wish for him is just that he is able to take care of himself when we are gone, as this society is cruel to the disables.
Another mother at Fei Yue told me yesterday about her experience at IKEA. They have those playroom for the kids which you can leave the kids there while you are shopping. SO, she left her autistic son there to play with his elder brother. But while they are shopping halfway, they heard their names being called through the paging system in the store. And she was wondering why. The satff actually ticked her off because she didn't inform the staff about her child condition, and he actually dig his pampers and smell his hand, and other parents took their kids away for the fear of catching any germs from this unhygienic boy....gosh! I hope autism awareness movement will be the next campaign the government wanna think of. If i were her, I will feel very sad and I will probably cry within... I don't know what to say, really.....
Okay, off we go to kyoko's place now :-) Another 30 mins of crying.......
Monday, March 10, 2008
New strategy for taking supplements
I was talking about Edelson centre on my last post, and I said that I will implement his method for nutritional therapy. And we started on 7/03/08, I changed some of his supplements and add lots of new one.
Here is the list of the supplements (all obtained from http://www.kirkmanlabs.com/, friendly staffs & fast delivery :-) & i am not working for them for writing this);
1. Amino support powder / 1/2 teaspoon
2. TMG with folinic acid & methyl B-12 capsule / 3 capsule per day in the morning
3. Enzyme complete DPP-IV / 2 capsules with every meal per day
4. Pro-Omega (Omega 3 & 6) soft gel capsule / 1 capsule per day
5. Grapefruit seed extract capsule / 2 capsule per day
6. Multiple mineral pro-support capsule / 1 capsule per day
7. Multiple vitamin pro-support capsule / 1 capsule per day
8. Hypoallergenic Pro-Bio Gold / 1 capsule per day
9. Acetyl-L-carnitine capsule / 1 capsule per day
10. Milk thistle capsule / 2 capsules per day
11. B-complex with coenzyme support powder / 1/2 teaspoon per day
12. Calcium powder / 1/2 teaspoon per day
13. B-6/Magnesium chewable wafer / 3 wafers per day
14. Folic acid tablets / 30 tablets per day (it's chewable & sweet :-))
15. Hypoallergenic vitamin C capsule 250 mg / 8 capsules per day (he needs this for his flu symptom, he is not having any slightest flu again)
16. Hypoallergenic vitamin E capsule / 1 capsule per day
This list is not for the faint hearted, but somehow it helps him a lot, he is calmer, babbling more new words, VERY good eye contact, happier, better social skill (can pull Derrick's hands to ask him to play with him), less self beating, less t-shirt chewing, less banging on furnitures & doors, less crying for no reason, & the most important part, he is imitating more now, he will coo after you if you make the sounds that he also know, he on/off the TV just like Derrick :-( hehe.
I am really hoping my effort will help him to be better each day. Then I can go out there and do whatever I wanna do, such as working, watching movie, shopping, etc. Now all those are only in my dream, haha. While i am still alive and kicking, i wanna do all the things i wanna do, as we never know what tomorrow will hold.......
Monday, March 3, 2008
Edelson centre closed
That's what i found out when I ran through Edelson centre at Google. To my dismay, they faced 3 law suits because of many things, check this out :http://www.quackwatch.org/11Ind/edelson.html
Internet is a powerful tool, you can find practically anything you want to know about. And I don't think Edelson's way in treating autistic children is totally wrong, he does has the basic, but just the way of administering the treatment is totally wrong. I will implement what he wrote in his book using my own mean & money. Sauna therapy for detoxification, nutritional therapy, chelation for removal of heavy metals, intervention programs, ST & OT.
Internet is a powerful tool, you can find practically anything you want to know about. And I don't think Edelson's way in treating autistic children is totally wrong, he does has the basic, but just the way of administering the treatment is totally wrong. I will implement what he wrote in his book using my own mean & money. Sauna therapy for detoxification, nutritional therapy, chelation for removal of heavy metals, intervention programs, ST & OT.
Sunday, March 2, 2008
Temper tantrum
Darren's temper tantrum is getting worst nowadays, he will show his unhappiness when we ask him to do something against his will. He knows how to protest now...which i don't know how to react to it, want to be happy or angry :-)
Today is my dad-in-law's birthday. So like usual, we have dinner as a family at the coffee shop opposite our house. This year I decided to bring Darren along, as I think that he needs more exposure to this kind of environment, and we can't keep him at home forever just because he is autistic & too troublesome. Like I expected, he didn't wanna sit on the high chair for baby, and he refused to sit on my lap also. He cried & screamed and hit his head with his fists. But what i didn't expect is the reaction of people at the coffee shop. They are very dismay & treat it as a free show :-). And my dad-in-law actually buried his face behind newspaper. hehe. I was angry at this reaction at 1st, but hey! I told myself, they are just not aware of what is autism. And that's why autism awareness movement is very important.
And I have decided whatever help is needed in the autism organisations (any organisation), I will try my very best to help & share my experience about Darren, to create more autism awareness. Papa was a bit uneasy about what happened at the coffee shop, so I told him, this is one of the many challenges we are going to face ahead of us as Darren is getting bigger & he has his own will also, and he is not robot which we can control along, so no matter what happen, no matter what others think about him, we have to thicken our face skin & just ignored it... I think my face is already very thick by now as I am always with him everyday, bringing him to public places. Papa is just not used to it, which I understand. But Papa, we have more to learn from this little lost brain. So, Gambate!
Like I said before in my previous post. Kyoko has already warned us that his behavioral problems will alleviate as we go along the treatments, so we can expect worst temper tantrum, eating & licking of non-food objects, hyperactivity, self injury, etc. But after the treatment is completed, I hope those will go down gradually.....
Friday, February 29, 2008
The wonder of vitamin C
He has been having cough & cold for more than a week, and I am devastated as the medicines from GP don't seem to cure his ailment. So, I decided to read up on some books about supplements; DR. JANSON'S NEW VITAMIN REVOLUTION & CONQUERING AUTISM Reclaiming Your Child Through Natural Therapies by Stephen B.Edelson, M.D.
Edelson believes strongly that the main culprit that causes autism is toxins in the body system. And he believes STRONGLY that autism is reversible, and it's even easier in younger children. You must be thinking how can those toxins end up in these little bodies? Well, we live in this world full of toxins, detergent, heavy metals; lead, mercury, copper, etc. And what makes matter worst is we live in Jurong (industrial area). I have been always thinking that the water here is dirty, and now it turns out that this fact might be true. When a pregnant lady drinks from this contaminated water, the chance of her having baby with problem, like autism, down syndrom, etc is bigger. Now i am thinking we should get a good water filter..... eventough PUB always say that it's not necessary, but better be safe than sorry.
Edelson mentioned about the abnormality of liver in autistic individual, that causes them not being able to do natural detoxification process, which add up to the situation, the toxins are all build up inside that little body and causes a lot of abnormal bodily functions, leaky gut, blood supply to the brain is not enough, can't absorb enough nutrients from foods, low immune system, and the list can go longer as our body is just like a machine which needs all the organs to be working properly to produce a healthy individual.
In his book, he mentioned about some treatments to autism; detoxification, chelation therapy, natural supplements (vitamins, minerals, fatty acids, enzymes & amino acids), & early intervention program (behavioral modification, ST, OT, Loovas therapy, ABA, etc). I believe all of these works together in order to see some improvements. Currently Darren is on chelation, natural supplements & early intervention program. But we have not done detoxification, Edelson suggested using sauna to achieve the wanted result, 30 mins per day, everyday. So, after papa get his membership card done at arena country club, we will be having the sessions there everyday. I hope he will be able to improve......
Looking at his condition, cold & cough very often. I decided to up his intake of vitamin C, I was giving him 750 mg/day, but now I am giving 2000mg/day. I started it yesterday, and his cold is gone by today, but he is still coughing ocassionally. I think, he just need more vitamin C to help his weak immune system. And to my surprise, vitamin C helps with his speech too, he is babbling even more today. Making a lot of noise at home, at school & in the bus. People turn and look at him in the bus because of his funny speech, but I don't really care, as I am happy to hear him babbling away. haha.
Edelson believes strongly that the main culprit that causes autism is toxins in the body system. And he believes STRONGLY that autism is reversible, and it's even easier in younger children. You must be thinking how can those toxins end up in these little bodies? Well, we live in this world full of toxins, detergent, heavy metals; lead, mercury, copper, etc. And what makes matter worst is we live in Jurong (industrial area). I have been always thinking that the water here is dirty, and now it turns out that this fact might be true. When a pregnant lady drinks from this contaminated water, the chance of her having baby with problem, like autism, down syndrom, etc is bigger. Now i am thinking we should get a good water filter..... eventough PUB always say that it's not necessary, but better be safe than sorry.
Edelson mentioned about the abnormality of liver in autistic individual, that causes them not being able to do natural detoxification process, which add up to the situation, the toxins are all build up inside that little body and causes a lot of abnormal bodily functions, leaky gut, blood supply to the brain is not enough, can't absorb enough nutrients from foods, low immune system, and the list can go longer as our body is just like a machine which needs all the organs to be working properly to produce a healthy individual.
In his book, he mentioned about some treatments to autism; detoxification, chelation therapy, natural supplements (vitamins, minerals, fatty acids, enzymes & amino acids), & early intervention program (behavioral modification, ST, OT, Loovas therapy, ABA, etc). I believe all of these works together in order to see some improvements. Currently Darren is on chelation, natural supplements & early intervention program. But we have not done detoxification, Edelson suggested using sauna to achieve the wanted result, 30 mins per day, everyday. So, after papa get his membership card done at arena country club, we will be having the sessions there everyday. I hope he will be able to improve......
Looking at his condition, cold & cough very often. I decided to up his intake of vitamin C, I was giving him 750 mg/day, but now I am giving 2000mg/day. I started it yesterday, and his cold is gone by today, but he is still coughing ocassionally. I think, he just need more vitamin C to help his weak immune system. And to my surprise, vitamin C helps with his speech too, he is babbling even more today. Making a lot of noise at home, at school & in the bus. People turn and look at him in the bus because of his funny speech, but I don't really care, as I am happy to hear him babbling away. haha.
Wednesday, February 27, 2008
Oh...My...Sweet Lord
Our new maid failed her english test 3 times in a row, so she has to go back to indonesia (Batam) to prepare for some more tests when she comes back. I hope she will be able to pass, if not we have to wait for another 3 weeks to get another new maid. No doubt I am tired, my whole body is aching & I can't even do my work on the skin designs for SL project with all the house work & the 2 devils.
Darren has grow closer to me, because I have been taking care of him for almost 3 weeks. But nowadays he always asks me to carry him, and I am losing weight now, so you know what i mean, he is heavy now & I don't have the strength to carry him for long period. He will get angry whenever i refused to hold him in my arms. He will pull my hands, push me from behind & whine. This is driving me nuts, I can't even enjoy my fav TV show.......
He is down with flu & cough again, it has been a week. Maybe because of the weather. This time round Bio 5 (homeopathy medicine) doesn't seem to work on his predicament. So, I decided to give him those medicine from GP, which, thank God, he is ok with after taking. I guess it's because he is taking supplements everyday, so his body is changing from the last time when he took those medicines & went berserk.
The line on the front part of his head is beginning to fade, which Kyoko & me feel happy about. Once the line goes away, he will be all right.....that's our goal at this moment.....at least....
He has been sleeping well despite his blocked nose. This is important, as I will be worn out if he tortures me during the day and refuse to sleep at night. I am fortune, because that's not the case. He makes a lot of new noises also. something like, pa pa pa, ihing ihing ihing, aja aja aja, & I don't know if I am crazy for him to speak out or it's the truth, he can call me Mama now.
He still doesn't know what does he supposed to do with a straw. So, I am still trying very hard to get the idea into his head. He knows how to do the sucking motion, but he doesn't know what is that straw supposed to be doing on his mouth, he will just bite on it till it breaks apart.
Tomorrow is another hard day......... Good luck to me......
Darren has grow closer to me, because I have been taking care of him for almost 3 weeks. But nowadays he always asks me to carry him, and I am losing weight now, so you know what i mean, he is heavy now & I don't have the strength to carry him for long period. He will get angry whenever i refused to hold him in my arms. He will pull my hands, push me from behind & whine. This is driving me nuts, I can't even enjoy my fav TV show.......
He is down with flu & cough again, it has been a week. Maybe because of the weather. This time round Bio 5 (homeopathy medicine) doesn't seem to work on his predicament. So, I decided to give him those medicine from GP, which, thank God, he is ok with after taking. I guess it's because he is taking supplements everyday, so his body is changing from the last time when he took those medicines & went berserk.
The line on the front part of his head is beginning to fade, which Kyoko & me feel happy about. Once the line goes away, he will be all right.....that's our goal at this moment.....at least....
He has been sleeping well despite his blocked nose. This is important, as I will be worn out if he tortures me during the day and refuse to sleep at night. I am fortune, because that's not the case. He makes a lot of new noises also. something like, pa pa pa, ihing ihing ihing, aja aja aja, & I don't know if I am crazy for him to speak out or it's the truth, he can call me Mama now.
He still doesn't know what does he supposed to do with a straw. So, I am still trying very hard to get the idea into his head. He knows how to do the sucking motion, but he doesn't know what is that straw supposed to be doing on his mouth, he will just bite on it till it breaks apart.
Tomorrow is another hard day......... Good luck to me......
Subscribe to:
Posts (Atom)
