more awareness & different reaction

Darren's teachers at Fei Yue reported to me that he has different reactions nowadays. He will be very angry and scream to show his unhappiness, when he is forbidden to do something or when someone bump into him. This is in a way good improvement :-)

I hardly hear him cry nowadays, as the maid is just like a good mother to him. Bringing him go to the playground as often as he likes, sometimes 3 to 4 times per day. haha. She reported to me that now he can go up the steps and slide down on the slide on his own, without any assistance. That's very good, but she said, he will be very angry if there are other kids in the playground using it at the same time as him. He will cry and scream. Meaning his social skill is still not improving........

We went to Suan lin's place today for his speech therapy. SO far so good, he was able to say ler ler ler when suan lin said "colour". She is quite happy with his improvement nowadays.

I talked to an sl musician from germany. He was thinking of writing a song and he wants me to write the lyrics. I will use this opportunity to work on autism awareness :-) Hard work but it will be worth it.

Derrick turned 2 years old on 24 March 2008. Happy birthday Derrick! We love you.

"NO MORE"

It has been a week since I last pen down here. Last week Darren surprised me with another words coming out from his mouth. I was giving milk to him that afternoon, he gave it to me while it left with a bit of milk, so I gave it back to him to finish it. He actually gave it back to me & he said "NO MORE". I couldn't believe my ears, so I took it from his hand and gave it to him again, yet he gave it back to me and said "NO MORE". I was of course filled with pure joy. :-) My efforts don't go down the drain.And those people who thinks that autism is not reversible, I will proof them wrong in the end........

I am going to Bali again this coming June. I need a break from all this stress I put on myself in order to reverse this devil called "autism". But it will be all worth if in the end if Darren is able to blend into this cruel society.

He is babbling, more and more new words this week. And his eye contact & engagement with me and the maid has definitely improved. And I am happy for him. But we can't afford to go for his therapies this week as papa is having problem with his salary processing from the govt. Hey govt uncles & aunties, my boy needs those therapies, so please.....just process those money and give it to us........

Rainy season again

This month the rain seems to be pouring a lot. I hate this kind of weather, as bringing Darren to his school & therapies will be a big hassle. He likes to play with rain & I have difficulty keeping him under the umbrella. hehe

Today he went for his intervention at PCS JW like usualk, but the timing has been changed to 1.45 PM as the centre has something on in the morning so Mrs. Mohan was unable to teach Darren. When I arrived at the centre to pick him up, I was amazed to see him sitting on the chair, alone! Mr.s Mohan has gone to another room to get something, and he was actually sitting down there to wait! This is big improvement. I am really happy for him.

We got our new maid finally. A refined lady, who is very patient with the kids. I hope this one will be able to work for us for long as I like the way she handles the kids. And they adore her also. She is just like my mom, gentle & kind.

Darren doesn't cry for no reason now & he enjoys playing with Derrick in the evening when he is back from childcare. I am really really happy to see this kind of improvement in him. Eventough my granny just phoned me earlier, to tell me that she helped me to ask the "god" in my hometown about Darren's condition and the god actually said that he was born that way, means the chance of recovery is slim, but we never at the 1st place expected him to recover and function like a normal kid. Our wish for him is just that he is able to take care of himself when we are gone, as this society is cruel to the disables.

Another mother at Fei Yue told me yesterday about her experience at IKEA. They have those playroom for the kids which you can leave the kids there while you are shopping. SO, she left her autistic son there to play with his elder brother. But while they are shopping halfway, they heard their names being called through the paging system in the store. And she was wondering why. The satff actually ticked her off because she didn't inform the staff about her child condition, and he actually dig his pampers and smell his hand, and other parents took their kids away for the fear of catching any germs from this unhygienic boy....gosh! I hope autism awareness movement will be the next campaign the government wanna think of. If i were her, I will feel very sad and I will probably cry within... I don't know what to say, really.....

Okay, off we go to kyoko's place now :-) Another 30 mins of crying.......

New strategy for taking supplements

I was talking about Edelson centre on my last post, and I said that I will implement his method for nutritional therapy. And we started on 7/03/08, I changed some of his supplements and add lots of new one.

Here is the list of the supplements (all obtained from http://www.kirkmanlabs.com/, friendly staffs & fast delivery :-) & i am not working for them for writing this);

1. Amino support powder / 1/2 teaspoon

2. TMG with folinic acid & methyl B-12 capsule / 3 capsule per day in the morning

3. Enzyme complete DPP-IV / 2 capsules with every meal per day

4. Pro-Omega (Omega 3 & 6) soft gel capsule / 1 capsule per day

5. Grapefruit seed extract capsule / 2 capsule per day

6. Multiple mineral pro-support capsule / 1 capsule per day

7. Multiple vitamin pro-support capsule / 1 capsule per day

8. Hypoallergenic Pro-Bio Gold / 1 capsule per day

9. Acetyl-L-carnitine capsule / 1 capsule per day

10. Milk thistle capsule / 2 capsules per day

11. B-complex with coenzyme support powder / 1/2 teaspoon per day

12. Calcium powder / 1/2 teaspoon per day

13. B-6/Magnesium chewable wafer / 3 wafers per day

14. Folic acid tablets / 30 tablets per day (it's chewable & sweet :-))

15. Hypoallergenic vitamin C capsule 250 mg / 8 capsules per day (he needs this for his flu symptom, he is not having any slightest flu again)

16. Hypoallergenic vitamin E capsule / 1 capsule per day

This list is not for the faint hearted, but somehow it helps him a lot, he is calmer, babbling more new words, VERY good eye contact, happier, better social skill (can pull Derrick's hands to ask him to play with him), less self beating, less t-shirt chewing, less banging on furnitures & doors, less crying for no reason, & the most important part, he is imitating more now, he will coo after you if you make the sounds that he also know, he on/off the TV just like Derrick :-( hehe.

I am really hoping my effort will help him to be better each day. Then I can go out there and do whatever I wanna do, such as working, watching movie, shopping, etc. Now all those are only in my dream, haha. While i am still alive and kicking, i wanna do all the things i wanna do, as we never know what tomorrow will hold.......

Edelson centre closed

That's what i found out when I ran through Edelson centre at Google. To my dismay, they faced 3 law suits because of many things, check this out :http://www.quackwatch.org/11Ind/edelson.html

Internet is a powerful tool, you can find practically anything you want to know about. And I don't think Edelson's way in treating autistic children is totally wrong, he does has the basic, but just the way of administering the treatment is totally wrong. I will implement what he wrote in his book using my own mean & money. Sauna therapy for detoxification, nutritional therapy, chelation for removal of heavy metals, intervention programs, ST & OT.

Temper tantrum

Darren's temper tantrum is getting worst nowadays, he will show his unhappiness when we ask him to do something against his will. He knows how to protest now...which i don't know how to react to it, want to be happy or angry :-)

Today is my dad-in-law's birthday. So like usual, we have dinner as a family at the coffee shop opposite our house. This year I decided to bring Darren along, as I think that he needs more exposure to this kind of environment, and we can't keep him at home forever just because he is autistic & too troublesome. Like I expected, he didn't wanna sit on the high chair for baby, and he refused to sit on my lap also. He cried & screamed and hit his head with his fists. But what i didn't expect is the reaction of people at the coffee shop. They are very dismay & treat it as a free show :-). And my dad-in-law actually buried his face behind newspaper. hehe. I was angry at this reaction at 1st, but hey! I told myself, they are just not aware of what is autism. And that's why autism awareness movement is very important.

And I have decided whatever help is needed in the autism organisations (any organisation), I will try my very best to help & share my experience about Darren, to create more autism awareness. Papa was a bit uneasy about what happened at the coffee shop, so I told him, this is one of the many challenges we are going to face ahead of us as Darren is getting bigger & he has his own will also, and he is not robot which we can control along, so no matter what happen, no matter what others think about him, we have to thicken our face skin & just ignored it... I think my face is already very thick by now as I am always with him everyday, bringing him to public places. Papa is just not used to it, which I understand. But Papa, we have more to learn from this little lost brain. So, Gambate!

Like I said before in my previous post. Kyoko has already warned us that his behavioral problems will alleviate as we go along the treatments, so we can expect worst temper tantrum, eating & licking of non-food objects, hyperactivity, self injury, etc. But after the treatment is completed, I hope those will go down gradually.....