Tuesday, January 29, 2008

Darren is babbling more







Darren is babbling more new words now, e.q. pa pa pa, da da da, ehing ehing ehing, etc. His eye contact is better now, and he will smile happily if he sees someone smile. I am happy with this progress. I think the combination of early intervention, homeopathy, bio medical, cranio, OT, ST & music therapy have helped him a lot.

We went to many places today. 10.45 am to 12.15 pm at PCS JW, 3.15 pm to3.45 pm at Kyoko's & 7 pm to homeopathy clinic. But because it was raining, so i went to the clinic myself to top up his medicine supply. He was given 3 types of medicine, to strengthen his immune system, so that he will not get cold & cough so easily &to help with his speech development.

At Kyoko's, he still cried, but he cried less as he only grunt & kicked his two legs now. No more screaming & big struggle.His head feels so much softer today, & the bump on his had above his forehead is not that big anymore. According to Kyoko, this is the place where understanding & feelings will develop. That's why we can see big difference in his response & behaviour.

Went to Bali for 3 days vacation, as I need a break. It's a paradise. Definitely will go back there when Darren is having his holiday, maybe in June.

Thursday, January 24, 2008

Nod..nod..nod







We went to Kyoko's on Tueday. He was quite happy when he went inside, ran around the room, banged on every doors, as we had to wait for Kyoko to finished with her earlier session. The moment he saw Kyoko, he started whining. haha. So, in we go into the therapy room, he cried & screamed when we put him on the massage bed, I told Kyoko about the condition of his head, not as soft as the 1st 2 sessions. So she put in more effort this time, as I can see Darren gone quiet for 10 secs & staring into space for a while. I think he can feel something on his head, something comfortable. I am happy to see this reaction for the 1st time during his CST sessions so far.

Nowadays he always nod his head & mumbling a lot of new sounds. And he will feel the vibration of his vocal cord by putting his finger on his throat everytime he talk or scream. I think this is good sign, showing that he is aware that he has to talk somehow. I hope this this not another false hope. I am really concern about his speech.

Went to PCS JW this morning, the teacher reported that his eye contact is very good now, and everytime his eyes meet someone's eyes, he will give a big grin/smile. This is also good sign, he has realised that he has to socialised. His level of understanding is at higher stage now, he will know how to see our face expressions, when u are angry he will turn & walk away. If you smile at him, he will give an even bigger smile, haha.

Maid is going after CNY. Have to get a new maid. Hope that we will get a good one this time. As, Darren & Derrick are still so young. When they are bigger, I don't think I wanna get a maid anymore. Really a headache & still need to tolerate a stranger living in our household. Papa's salary is still not in yet, and today is 24 Jan already. All the bills are unpaid, CNY is coming & Darren needs his supplements & therapies. MOE is really playing a trick on us. Think this CNY won't be that easy without money. Money can't buy everything, but without money a lot of things can't be done.

Saturday, January 19, 2008

It has been many weeks

It has been many weeks since I last wrote down my thoughts in here. Because I really have nothing to write. Darren is responding well to homeopathy medicine, brought him down on 4th January & he was given some medicines which looks like sweets, small & delicate. He took that till now, and his flu & cough has never attack him since. I am grateful for this, as he has gain some weights also. I have not bring him to the scale yet, but I can see it from his big big tummy, haha. Some of his clothes are very tight also. He has to wear the clothes given by Maya, as they are bigger. I am really glad :-)
Cranio seemed to help him for the 1st 2 weeks that we went for the treatment, but nowdays his head is still feels very tight. Was at Sanjay's place today for OT and he was kind of cranky, crying over slightest thing, can't be push to do things that he doesn't like. It was not like that few weeks back, I think I mentioned it in the earlier post about how Sanjay think that he is a different Darren. Sanjay told me that he actually recommended a lot of kids to Kyoko after he saw what kind of achievement that Darren has after 2 Cranios at Kyoko, but I will tell Kyoko about this fact on Tuesday when we are seeing her again. Maybe it's also because Darren dislikes the sessions there, and he will cry for the whole 30 mins session, that's why Kyoko can't really concentrate, thus the result is not so good.
We took a taxi from Sanjay's place back home just now. And the uncle casually asked me if i am going back home and what did I do at Daisy Avenue. So I told him we are there for therapy because Darren is autistic. And the uncle told me that he is also a dad of an autistic boy who is 18 years old. I think fate brought us together. He shared his life story with me, he told me that he feels that money can't buy anything, as long his boy is healthy & normal, he will feels happy eventough he is poor, but can give food to his children. I am so touched when I heard this. He is right, as parents we just want our kids to be healthy above anything else. We can even trade our souls for that. He told me that his son is a real problem, very autistic, and he has nowhere to go now as special schools stops at 17 years old. So, everyday he is coop up at home. His wife is not working because has to look after their son, and he told me another thing that I feel reall sorry for him. He told me that sometimes, he is afraid that his wife will think that enough is enough and will leave the family. He said without his wife, he doesn't know how to cope with his son condition as he has to go out & work. And he told me that when his son is young, they ever admitted him to IMH for few months as he has the habit of beating himself till his face is swollen. I feel really sorry for them, because eventough Darren is autistic, but he is not a very serious & gone case, with therapies, intervention programs & supplements he has shown very great improvement this 1 year. I feel grateful, really.... So, never stops counting your blessings instead of complaining.......
I am learning how to do cranio on Darren from the guide book that Sanjay lent to me. I am not that great yet but I hope I will improve with constant practise, so we can save on some money going to Kyoko's after his 10 sessions are over. Last week he was sick, so I did cranio on him, and I ended up with flu, cough & uneasiness in my head. According to Sanjay, it's because Darren's sickness has all moved to my body instead, which I believe is true, because after the cranio sessions I did on him, he was okay. His flu & cough subsided almost immediately.

Friday, January 4, 2008

It's new year & a new school term

Darren has started his intervention program again after the 1 month holiday. He seemed to remember the PECS schedule on the wall, because the 1st thing he did when he stepped into the class was to play with those. He got a bit disoriented, hard to follow instructions, as the holiday is a month, and he needs to tune his mind again to go back to storing information.
Hope he will be ok in no time. But the good thing is, he didn't cry during the class. Think he is more composed & calm nowadays.

I think OT @ Sanjay's & Cranio @ Kyoko's will also start this week hopefully. This SUnday will be ST @ Suan Lin's again. Hopefully she doesn't cancelled lesson again :-)

Darren was sick for the whole month of December, down with flu & cough. Come & go, whole month long. Like I said b4, December is not a good month for the boys. Rainy month. He was ok for a while after eating homeopathy medicine, but then he is sick again now, flu & cough again. Got to bring him down to the homeopathy clinic again tomorrow.